Children with complex illness present a challenge to our current system of care organization. This paper
explores the policy issues raised by this new and specific population of pediatric patients, and suggests that effective
system re-engineering must consider both the broader demographic and economic realities informing health system
decision-making as well as the dominant health policy prerogatives of the health system writ large. The fundamentals of
the policy process will be emphasized and a road map for change will be presented.
Keywords: Child health policy, medically complex children, chronic conditions, health services research
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