Background: Caregivers of persons with Alzheimer’s Disease (AD) often experience feelings
of lack of support and information from specialists when operating in real scenarios, inclusive of old-age
psychiatric wards, care homes, community, and patient’s home.
Objective: AD caregivers can provide narrative about what issues need to be addressed in Ecological
Momentary Assessment (EMA) to capture real-time and real-scenario needs in AD caregiving, and Ecological
Momentary Interventions (EMI) as online e-learning to assist in areas of concerns.
Method: Twelve focus group discussions took place with AD caregivers for a total of 62 people interviewed.
Once major themes in surveys and learning were identified by using discourse analysis, AD
caregivers expressed the likelihood that these themes (where 0 meant “nil” and 1 meant “completely”)
would address their focal needs in caregiving and topics in learning. Z scores for proportions and
Cohen’s d effect size were calculated for each item reporting the averaged scores.
Results: AD caregivers indicated that the major areas of concern that could benefit from an EMA/EMI
online platform were: support (d=3.08), collaboration (d=1.85), medication review (d=1.21), dealing
with grief and mourning, and time (d=0.97). Moreover, they identified personal resources available to
provide help to colleagues: support (d=1.34), information (d=0.97), collaboration (d=2.06), hospital admission
(d=3.08), and hospital discharge (d=5.50).
Conclusion: Focus groups and narratives can be the initial stage in creating a dedicated AD app supporting
EMA/EMI in AD care.