Development of a Registry for Down Syndrome in the Gulf Area of the Middle East

Author(s): Jennifer Corder.

Journal Name: Applied Clinical Research, Clinical Trials and Regulatory Affairs

Volume 3 , Issue 3 , 2016

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Abstract:

Systems for organizing specific data about large groups of people have been in existence for many years; their structures depend greatly on their purposes and goals. This paper describes the creation of a registry and database detailing demographics and co-occurring conditions of a population with Down syndrome living in the United Arab Emirates. The Gulf Down Syndrome Registry-Abu Dhabi seeks to describe the population’s demographics and associated co-occurring conditions, bringing attention to their unique needs through description of findings.

Keywords: Down syndrome, registry, down syndrome registry, gulf down syndrome registry, United Arab Emirates, co-occurring conditions, demographics.

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Article Details

VOLUME: 3
ISSUE: 3
Year: 2016
Page: [164 - 167]
Pages: 4
DOI: 10.2174/2213476X03666161111120843
Price: $58

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