Title:The Status of Disease Registries in the United States: Reflections
VOLUME: 2 ISSUE: 2
Author(s):Sachin Gupta
Affiliation:Kaiser Permanente, Division of Pulmonary and Critical Care Medicine, 2500 Merced Street, San Leandro, CA 94577.
Keywords:Bioinformatics, healthcare equality, medical registry, outcomes, precision medicine,
pulmonary hypertension.
Abstract:Medical registries are designed to determine epidemiological associations between disease
and exposure, including those initiated by clinicians. Data driven analyses typically exclude bias,
however it is important as ever to consider. Bioinformatics is allowing more data to be collected than
ever before, to ultimately improve health care across the spectrum.