Inside Health Care: Neonatal Intensive Care -Who Decides? Who Pays? Who Can Afford It?

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Health care in the US is facing a crisis, but there is polarization and disagreement among policy makers and the public about how to solve this crisis. The overall outcome is ranked much lower than ...
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Complex Cases in Neonatal Care: Severe Birth Defects Involving Multiple Organs

Pp. 116-122 (7)

Brian S. Carter

Abstract

In this chapter, we address the clinical and ethical issues that are operant in a case of an infant having severe birth defects that involve multiple organs. A single case is presented as a paradigm for alternative actions and the necessary points to consider in their evaluation, management and parental interactions.

Keywords:

Prenatal diagnosis, Birth defects, Congenital heart disease, HLHS, Child’s best interests, NICU, Fetus, Health care resources, Twin gestation, Ethics, Quality of life.

Affiliation:

University of Missouri-Kansas City, Children’s Mercy Hospital & Clinics Bioethics Center and Section of Neonatology, 2401 Gillham Road, Kansas City, MO 64110, USA